MyFibroTeam

It's not a blog you can actually put in all your information, they want you to only "comment" on their professionals, which at times gives disputed information ("Fibro is a result of Depression/Anxiety and therefore you need to take antidepressants to deal with your Fibro". Fibromyalgia is a syndrome that has no known cause based on shared symptoms not on causality, and while someone can have depression or anxiety as a RESULT of having Fibro, it is not the cause of the condition unless the person was diagnosed with anxiety or depression BEFORE having the diagnoses finding Fibromyalgia). I am a bit frustrated with the 'professionals' that are posting. Many of the comments are highly Christian which is FINE if this is agreed that the site is geared for only Christian support. For those who are not, will find themselves isolated there further than before joining this website, because being told to "quit complaining and consult your Bible" (as one member suggested to someone feeling at the end of their rope), was pretty demeaning and insensitive. This should have been a way to report this to a moderator but there is no where to suggest that posts need reviewing. Another post suggested "Eureka! They found the cure for Fibro" which again, was based on a sales ad that the member couldn't understand was just an ad and would give 'false hope'. Lastly, getting 20 emails a day or more sending "hugs and likes" isn't the same as connecting with others. At first this seem nice, but you spend a great deal of time consoling others, great deal of time explaining Fibro to folks and a great deal of time correcting misinformation. I joined the site for new information on Fibro, connecting with others that have this condition, only to find that YOU do all the work, their professionals at times give seriously faulty information (that can't be turned in as incorrect) and is a wonderful hot bed of support only if you are Christian. If you want a support group that doesn't take every day work, clog up your email, and requires you to increase the people you connect up with, i would find a page elsewhere that actually does support, and offers you allies that can assist you living with an illness, not make you work harder.